What Can Patient Registries Tell Clinicians About Possible Treatments?

Leaders in Genetic Autism Patient Registries Discuss Common Goals at Workshop In the genetic autism community, there are dozens of patient registries that have been set up over the last decade. Each of these online databases contains a goldmine of information from thousands, or even tens of thousands, of patients. In the rare disease space, where so little is known or understood, patient registries may be the key to answering some of the most pressing questions about the genes that cause certain forms of autism and the behaviors that characterize such disorders. Many of these patient registries were first set up by non-profit foundations and advocacy groups, such as the Dup15q Alliance or Ph

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