Report from Second Year Special Interest Group Meeting on Promoting Partnerships Between Researchers

IMFAR Special Interest Group, 2018 Rotterdam, The Netherlands May 12, 2018 Summary: On May 12, 2018, the Special Interest Group at the International Society of Autism Research entitled “Promoting Partnerships Between Researchers and Patient Advocacy Organizations” met from 7:15AM – 8:45AM. This year’s INSAR meeting was held in Rotterdam, Netherlands, and approximately 50 people were in attendance at this year’s SIG. Three presentations were made and the powerpoint slides can be found here. The group continued discussion on the importance of patient registries in research with some examples of actions that have been taken since last year’s SIG to advance coordination of existing registries.

Featured Posts
Recent Posts
Archive
Search By Tags

© 2017 by the Alliance for Genetic Etiologies in Neurodevelopmental Disorders and Autism.  All rights reserved.