CANDID (Consortium for Autism, Neurodevelopmental Disorders, & Digestive Diseases) is a newly-formed, multi-disciplinary collaborative organization that strives to bring together researchers, medical professionals, and patient advocacy groups around the issue of gastrointestinal disorders in NDDs. Gastrointestinal symptoms are experienced by many people with NDDs -- including those with rare genetic diagnoses -- which can have a significant impact on overall quality of life. However, the current diagnostic tools, therapies, and clinical guidelines for managing these symptoms in the general population are often insufficient or inappropriate for patients with NDDs.
CANDID is working to identify the most important GI-related issues in NDD populations, with the goal of educating medical communities and encouraging research that will lead to better therapies, better guidelines and assessments, and a better quality of life for people with NDDs and their families.
CANDID Conference & GI Survey
At our CANDID Virtual Conference meeting, which was held on June 8th and 9th of 2022, researchers and clinicians gave talks in their own areas of expertise and we heard important input from stakeholders and families. We also presented the results from our scientific survey on GI dysfunction in NDDs.
If you missed the meeting, all presentations are available on the candidgi webpage, as well as on the CANDID YouTube channel. If you would rather listen to a 25 minute summary, ASF's weekly podcast for July 11 offers a recap of all of the presentations given at the meeting.