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CANDID (Consortium for Autism, Neurodevelopmental Disorders, & Digestive Diseases) is a newly-formed, multi-disciplinary collaborative organization that strives to bring together researchers, medical professionals, and patient advocacy groups around the issue of gastrointestinal disorders in NDDs. Gastrointestinal symptoms are experienced by many people with NDDs -- including those with rare genetic diagnoses -- which can have a significant impact on overall quality of life. However, the current diagnostic tools, therapies, and clinical guidelines for managing these symptoms in the general population are often insufficient or inappropriate for patients with NDDs.

CANDID is working to identify the most important GI-related issues in NDD populations, with the goal of educating medical communities and encouraging research that will lead to better therapies, better guidelines and assessments, and a better quality of life for people with NDDs and their families.

CANDID Conference & GI Survey

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At our CANDID Virtual Conference meeting, which will be held on June 8th and 9th of 2022, researchers and clinicians will give talks in their own areas of expertise (click here for brief agenda), and hear input from stakeholders and families.

At the meeting, we will be presenting the results of our scientific survey on GI issues in NDDs. This survey is CURRENTLY ACTIVE, and we need as many responses as possible to create an accurate picture of what the community is struggling with most. Any parent/caregiver of a child with a diagnosed NDD (regardless of genetic diagnosis) is encouraged to participate.

To register for the meeting, click here.

To participate in the survey, click here.

For more information see our website at: www.candidgi.com

Or email us at: info@candidgi.com