October 4, 2019

A group of the most well known and respected scientists across the world have documented their perspectives on the importance of understanding rare genetic disorders in a variety of neuropsychiatric disorders, including autism.   They point out that better understandin...

June 13, 2019

Thanks to everyone who joined us this May in Montreal, Canada, bright and early at 7AM!  This year we had a very special guest:  Roche Pharmaceuticals, who presented their data on how they are collaborating with patient advocacy groups to improve communication and stud...

May 30, 2018

IMFAR Special Interest Group, 2018

Rotterdam, The Netherlands

May 12, 2018

Summary:  On May 12, 2018, the Special Interest Group at the International Society of Autism Research entitled “Promoting Partnerships Between Researchers and Patient Advocacy Organizations” met fr...

October 29, 2017

Leaders in Genetic Autism Patient Registries Discuss Common Goals at Workshop

In the genetic autism community, there are dozens of patient registries that have been set up over the last decade. Each of these online databases contains a goldmine of information from thous...

September 10, 2017

AGENDA Participated in The NINDS 2017 Nonprofit Forum

 View the PDF of the poster here.

On September 5-6 of 2017, The NIH National Institute of Neurological Disorders and Stroke (NINDS) invited members of nonprofit organizations to the Institute's 2017 Nonprofit Forum. T...

May 14, 2017

IMFAR Special Interest Group, 2017

San Francisco, CA

May 13, 2017

Summary: 71 people attended and signed in to the SIG, not counting presenters and organizers. Just under half were considered early career scientists. Almost everyone indicated that they wanted to continue...

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Report from the 3rd (and final) Special Interest Group at INSAR

June 13, 2019

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