AGENDA at Progress Through Partnership

AGENDA Participated in The NINDS 2017 Nonprofit Forum

View the PDF of the poster here.

On September 5-6 of 2017, The NIH National Institute of Neurological Disorders and Stroke (NINDS) invited members of nonprofit organizations to the Institute's 2017 Nonprofit Forum. The Progress through Partnership Forum provided an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.

The agenda featured panel discussions on research strategies, patient access to emerging therapies, clinical outcome measures, patient-centered research and success stories from patient organizations. The meeting also offered participants a casual setting for a discussion with NINDS program directors.

Megan O'Boyle, PhD, of the Phelan-McDermid Syndrome Foundation presenting.

Represented by AGENDA member Megan O’Boyle from PMSRF, AGENDA presented a poster highlighting the group’s activities and progress on collaborative activities to date.