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The mission of AGENDA is to improve outcomes for individuals with all forms of autism by fostering a genetics-first approach to autism and neurodevelopmental disorders research, and by strengthening collaborations among organizations representing genetically-defined disorders associated with neurodevelopmental disorders and autism.

CANDID GI INITIATIVE

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CANDID (Consortium for Autism, Neurodevelopmental Disorders, & Digestive Diseases) is a newly-formed, multi-disciplinary collaborative organization that strives to bring together researchers, medical professionals, and patient advocacy groups around the issue of gastrointestinal disorders in NDDs. Gastrointestinal symptoms are experienced by many people with NDDs -- including those with rare genetic diagnoses -- which can have a significant impact on overall quality of life. However, the current diagnostic tools, therapies, and clinical guidelines for managing these symptoms in the general population are often insufficient or inappropriate for patients with NDDs.

CANDID is working to identify the most important GI-related issues in NDD populations, with the goal of educating medical communities and encouraging research that will lead to better therapies, better guidelines and assessments, and a better quality of life for people with NDDs and their families.

American Academy of Pediatrics Meeting 2023 ->

AGENDA MEMBER ACTIVITIES IN DRUG DEVELOPMENT

This is a summary of the known compounds in the development pipeline according to the rare genetic disorder they target.

AGENDA PARTICIPATES IN UNITE US

What is                                          ? 

Over a decade ago, Unite Us pioneered the first closed-loop referral platform tailored specifically for veterans and their families. Today, leveraging our comprehensive suite of software and services, we unite more than 1,000 customers across the country. Our mission is to facilitate accountable connections to care for anyone in need, empowering government, healthcare, and local community-based organizations to thrive and focus on what they do best. Through cutting-edge technology, we seamlessly bring communities together, predicting, delivering, and facilitating payment for community-based social care. Our platform encompasses more than one million services, boasting the industry’s largest outcome-focused community network. Our award-winning experience distinguishes us, positioning Unite Us as the unparalleled partner for social care. 

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