May 30, 2018
IMFAR Special Interest Group, 2018
Rotterdam, The Netherlands
May 12, 2018
Summary: On May 12, 2018, the Special Interest Group at the International Society of Autism Research entitled “Promoting Partnerships Between Researchers and Patient Advocacy Organizations” met fr...
October 29, 2017
Leaders in Genetic Autism Patient Registries Discuss Common Goals at Workshop
In the genetic autism community, there are dozens of patient registries that have been set up over the last decade. Each of these online databases contains a goldmine of information from thous...
May 14, 2017
IMFAR Special Interest Group, 2017
San Francisco, CA
May 13, 2017
Summary: 71 people attended and signed in to the SIG, not counting presenters and organizers. Just under half were considered early career scientists. Almost everyone indicated that they wanted to continue...
Report from the 3rd (and final) Special Interest Group at INSAR
June 13, 2019
A Framework for the Investigation of Rare Genetic Disorders in Neuropsychiatry
October 4, 2019
Report from Second Year Special Interest Group Meeting on Promoting Partnerships Between Researchers and Patient Advocacy Organizations
What Can Patient Registries Tell Clinicians About Possible Treatments?
AGENDA at Progress Through Partnership
September 10, 2017
Promoting Partnerships Between Advocacy Groups and Researchers
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patient advocacy groups
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